Wow! I can't believe it has been a year since Addyson was diagnosed with JDM. She has been through so much in a course of a year and I don't see anything letting up anytime soon. I am trying to stay positive though. I know Addyson will be one of the lucky ones that makes it to Remission, it just won't be as soon as I had hoped! I know God has a plan for this little girl. She is so strong and has so much courage.
Most Kids Addyson's age are playing with dolls. But not Addyson, she wants to take turns playing with her IV bear. She pretends to give me an IV and treatment and then I pretend to give her one. Don't get me wrong I am so happy who ever came up with Baxter the IV Bear. I think it helps Addyson. But it just gets to me knowing that my beautiful little girl, is even having to worry about getting Treatments and blood drawls!
Addyson has been complaining a lot about her right leg hurting. She limps and won't use that leg going up and down stairs. Addyson hasn't had to worry much about the muscle weakness but I think it catching up with her now. We go to Chicago on Dec. 5, 2010 and I am ready to go so I can talk to the doctor. She still doesn't have all her energy back and hasn't for some time.
I have decided as of the first of the year to get out of Real estate for awhile. Matt and I agreed that with all the treatments, doctor appointments, Chicago trips that it is best. I was spending more money keeping my license then what I was making. Once Addyson is better and hopefully in Remission, I will come back. Luckily I have a dad, that completely understand! Since My dad and I were a Team in Real Estate, it was good to know he didn't have a problem with me leaving for a while.
Saturday, November 27, 2010
Tuesday, November 9, 2010
Addyson's blood work did go back normal. Which is a good thing but on the other hand it doesn't answer my questions. She is still barely eating and has no energy. Dr. Jarvis took her off Meth. from a couple of weeks. He thinks it may be to strong for her. So after two weeks we will start it up again. We found out we will be going to Chicago On December 5, 2010. Which I am looking forward to so i can talk to Dr. Pachman about what is going on!