A quick update on Addyson. She is doing very well. Addyson is loving 1st grade at her new school. Her teacher has been amazing with Addyson and is right on top of the sunscreen which is a huge deal. I couldn't be more happy with how the school handles her disease. She is almost done with soccer and getting ready to play basketball for the first time in December. She does complain about her next neck hurting from time to time. We see her New Doctor in January and I will talk to her about that.
Matt called Dr. Jarvis awhile back and he seemed very weak on the phone. Which breaks my heart b/c he pretty much saved Addyson and he will always have a special place in our hurts for that. I hope and pray he gets better soon b/c we are so lost with him and having a trustworthy doctor to go too.