November 23, 2009

After reading about this disease over the weekend, Matt and I were quite upset and scared for our little girl. I joined a website called CureJM and met alot of parents that their kids had the same disease. I especcially met a lady named Kalee who lived in Oklahoma and helped me get in contact with the only doctor in Oklahoma that treats this disease. I spoke with Dr. Jarvis at Children's Hospital around 5:15pm and he recommending not having the biopsy done. He is an expert in this disease so I said I wouldn't have it done. He wanted to meet with Addyson the next morning to start getting this disease under control.