Addyson had her 4th treatment today. Today the whole family went with her. That was interesting!! Kaylee slept the whole time and Kyler was flirting with all the nurses and running around everywhere..lol Addyson did okay. She still cries when she gets the IV but I think they are getting a little easier for her. Addyson colored with all of us while she received her treatment. Dr. Jarvis started her on another medication for her rash. There is no change today. She is still very tired!
We will be going Chicago on Jan. 25 to see Dr. Pachman. We had heard she is the best of the best with this disease. She even wrote a book on JDM. Dr. Jarvis in OKC is doing a wonderful job here, we are just going up there to make sure there is nothing else we can do to get her to Remission.
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