Monday, September 13, 2010
hospital
Well Addyson has been complaining about a headache and has had fever since Thursday. I took her to the Mercy's ER last night where they ran a whole bunch of test. Everything came back normal. They gave her fluids but couldn't get her temp down. They finally released her at 3am this morning and told me to go to Children's ER. The doctor said he doesn't know enough about this disease. I took her home and called Dr. Jarvis in the morning. He told me to go to our regular doctor. Which i did. and he said this is just going around. I didn't like that answer. I will wait a couple of days and if her fever and headache is not gone i guess i will take her to Children's ER.
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Isn't it frustrating that they are scared to treat our children! They just talked about that this weekend in Chicago. In a recent poll the pediatricians took our kids were the 3rd worst thing they had to treat behind cancer and cardiovascular kids. Makes you feel good doesn't it! That is why we have to push CureJM and educating them and their staff about the disease. So they will recognize it and not be afraid! I have bought extra Myositis and you books to give to the doctors office, the hospital, our eye doctor, the dentist, and any others that we run across that could use it in educating others!
ReplyDeleteWe are lucky in Oklahoma because we have doctors that know the disease. 30% of the states don't even have a pediatric rheumatologist! I learned all of this in Chicago this weekend. Kind of majorly opened my eyes!
I hope Addyson is feeling better. We were thinking about you guys and praying. Hang in there!