Monday, May 17, 2010

Okay we got the results back from Chicago a couple of weeks ago and they said everything is looking good and just keep everything the way it is. There is just one number that is elevated but since everything is in the normal range at this point we are not going to be concerned about it.

Today Addyson had a treatment and the port worked great! I am glad we have this figured out now. It has made a big difference in how Addyson handles these days. We also saw Dr. Jarvis, who said Addyson is doing very well and we are going to have Addyson go every 3 weeks for treatments. Yay!! I love hearing good news.

We are going to schedule an appointment for Addyson to talk to someone. Matt and I have noticed that she has alot of anger inside of her. My guess it is from all the problems with the port, the three surgeries and not understanding why people have to do this her. We thought it would be better to have this checked out now then later in life!! I will let you know how it goes.

April 20. 2010

Addyson had a treatment today. And guess what?? The port worked! Matt actually took he today and they figured out something by mistake. When she looks down at her port, somehow her port is getting tangled up. When she looks away, I guess it straightens out and works. Yay!!! It is better than nothing at this point. It takes 3 or 4 people to hold her down each week. Next time she has a treatment they are going to at least give her something to calm her down ahead of time. Hopefully it works.

We leave for Chicago on Sunday!

March 17, 2009

Today Addyson had a treatment done. THANKFULLY it worked. Three surgeries later, but hey all that matters now is that it continues to work from here on out. Addyson didn't even feel the needle either. She did throw a fit in the beginning but she is so use to getting stuck 3 or 4 times. But only once today! Yay. In fact she was more upset about getting the tape off her skin that held the IV. She is such a brave and strong little girl. I am so proud to call her our daughter!!!! I just know her littler brother and sister are going to look up to her.

She still isn't feeling the best. Coughing and running nose along with the rest of the family!