October 14, 2010

Well after speaking with Dr. Jarvis about Addyson. He wanted to see her ASAP. So Thursday, we went up to Children's Hospital. She received a treatment and also they took blood. Dr. Jarvis also came to see her during her Treatment. Dr. Jarvis wasn't even at the offices that day he came from the lab. I am lucky to have such a doctor that cares for his patients. He said he would call us after he got the blood results to see what the next step will be. I will update once I get that phone call.

Walt Disney World

Matt and I took Addyson along with my mom to Walt Disney World. Addyson had an unbelievable time. She got to get all dressed up like Cinderella., rode a ton of rides. Her favorite was Tower of Terror!! She didn't want to walk most of the time there. So that has me concerned. She isn't eating very well either. I am going to call Dr. Jarvis on Monday and see about them drawing blood and checking everything out. It could just be Addyson being lazy but something tells me is this stupid disease trying to creep back in our lives. I will let you know

ER visit #2

So Saturday Addyson woke up feeling worse and still running temp and throwing up. She couldn't keep the medicine down and was very tired. We called the doctor and he sad to take her to Children's ER. So we were there for 7 hours again. But they got her fever down, gave her fluids and gave her a bunch of antibiotics to kick the Pneumona in the butt..lol They were going to admit her but because of her disease they didn't want her around more sick kids with her immune system being so low. Which I am glad! I would rather have her at home! And the medicine worked. She started feeling much better on Sunday! Which is good because we leave for Walt Disney World on the Sept. 28th!

Pneumonia

Addyson start coughing on Thursday. So we took her back to the doctor on friday. Where they did an x-ray and we found out she had Pneumonia. Atleast I know what is wrong and we can get her on Medicine to make her feel better! Yeah!

hospital

Well Addyson has been complaining about a headache and has had fever since Thursday. I took her to the Mercy's ER last night where they ran a whole bunch of test. Everything came back normal. They gave her fluids but couldn't get her temp down. They finally released her at 3am this morning and told me to go to Children's ER. The doctor said he doesn't know enough about this disease. I took her home and called Dr. Jarvis in the morning. He told me to go to our regular doctor. Which i did. and he said this is just going around. I didn't like that answer. I will wait a couple of days and if her fever and headache is not gone i guess i will take her to Children's ER.

Surgery

Well Addyson got her Port removed on Monday. Everything we great. The surgery only lasted about 30 minutes! But it was a whole day event. You just have to love hospitals. Well After 4 surgeries for a pointless Port. I hope she never has to get another one. Overall she is doing good. She is a little sore but she is still very active. We took off her bandage and you would have thought we were killing her. I think that was the worst part. lol Addyson has a heart of gold and if you ever are around Addyson you would have thought she was just a normal child. Not fighting a life threatening disease. We learned just a few days ago that a boy died of this disease. It makes you so thankful for the little things!!!

Chicago August 15-18th

We just got back from Chicago. It was a nice trip but very glad to be home. We won't get the blood results back for a couple of weeks but overall Addyson seems to be doing good at this time. If everything stays good by the time we come back to Chicago in 3 months, we will be done with treatments and Dr. Pachman will start to lower the dosage on her medications. Yay!!! Hopefully we will stay on this path! I will write again once I have all the results!

Addyson will have her Port removed on Monday. We have to be at the Hospital at 8am. She is actually ready to get it out! I don't blame her at all.