We took Addyson to the mall and had her nails painted! She loves doing that. Matt and I have noticed she is very weak lately. She has to sit in a stroller while walking around the mall while her little brother walks. We have also noticed she is starting to fill out a little bit. Because of the steriods she is starting to look swollen due to the water retention. She always ask how many days till she has to go back to the doctor.
I called the doctor in Chicago who is the expert on this disease to make an appointment and we will hopefully be seeing her soon. She is my little trooper!! Hoping her appointment on Monday brings good news and we can start tappering off these meds and treatments!!!
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