We took her to see Dr. O'Neil for her appointment and to get her results. Addyson still wasn't feeling the greatest but overall is doing okay. She still gets the rash on her cheeks every once in awhile. She has been weak and tired but since she has been so sick, I didn't know if it was the disease or the illness. The blood results looked pretty good. They were not prefect but were not horrible either. We are not going to change anything and leave all meds the same.
Dr. O'Neil is leaving in a couple of months and now Addyson doesn't have a specialist in Oklahoma. Ugh They said they are suppose to be bringing in someone that specializes in JDM but no one yet. So frustrating to know you don't have a doctor that lives in your state. Hoping and praying a doctor will come soon to OU children's Hospital that has dealt with JDM before!!!
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